April 12, 2018
Darwin was ill for much of his life, largely restricted to his home. His mysterious illness was managed with rest and strict routine with work but also a beloved walking path and intimate family time. I don’t think I’m the … Continue reading
April 10, 2018
I assume people think surviving illness changes you because there’s something inherently character-building about pain. But what happened wasn’t a struggle, in the sense that through perseverance I overcame something difficult. For a fairly brief but unexpected period of my … Continue reading
March 3, 2018
I found this in my drafts folder from a few years ago. Yesterday I made (simplified and adapted-to-my-dietary-restrictions) curry, soup, and shepherd’s pie. I also walked someone to the bus stop. That is all I did. Today I can’t get … Continue reading
August 22, 2017
I started doing really well earlier this summer and had several weeks where I was able to do at least some work every single day. Then an environmental trigger I have no control over happened and I got stuck in … Continue reading
October 10, 2016
I get the aura, I take the pill, I lie down. The pain starts, increases, becomes everything. Two hours later it has quieted to a throb that consumes most, but not all, of my attention. The ice pack doesn’t help, … Continue reading
October 8, 2016
It’s a challenge to mindfully walk that middle path between being proactive about your health – always trying to improve it – but at the same time, accepting the way you are so that you can make the best of each day.
From Toni Bernhard’s How to Live Well with Chronic Pain and Illness
Illness is the space where I came to understand the limitations of my being. It’s a lesson we all learn but one I learned harshly and twice, first watching my mother and then enduring my own suffering. Now I know that I can lie down for hours without moving. I can meditate. I can stare at the wall and not despair. If I discovered something redemptive in this experience, it’s that capacity for stillness.
Source: Every Body Goes Haywire | Online Only | n+1