Gravity's Rainbow

botany, shoes, books, and justice

I wrote about how my understanding of disability has shifted from internal to external and how that’s affected my ability to get support.

A little smarts and hard work and luck can’t make my chronically ill body “productive.” Even if they did, it would only make it alright for me – and that’s not good or fair. Telling those stories for so long made dealing with the reality of living-with-chronic-illness-under-capitalism/being disabled and past traumas really difficult. As soon as I decided the problem wasn’t me, but the response of people and systems to me, I stopped getting funding. As Dr. Sara Ahmed says, “when you expose a problem, you po

Source: Why I can’t write a good personal essay | Tenure, She Wrote

April 12, 2018
by sarcozona
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If you want disabled people to contribute you have to let them. If you want to disabled people to live, you have to support them.

Darwin was ill for much of his life, largely restricted to his home. His mysterious illness was managed with rest and strict routine with work but also a beloved walking path and intimate family time. I don’t think I’m the … Continue reading

April 10, 2018
by sarcozona
0 comments

Being chronically ill doesn’t make me a better person, but it does help me identify jerks

I assume people think surviving illness changes you because there’s something inherently character-building about pain. But what happened wasn’t a struggle, in the sense that through perseverance I overcame something difficult. For a fairly brief but unexpected period of my … Continue reading