Posts tagged “Chronic Illness”

Migraine: a journal sample

May 19, 2018 I want to get up every day and feel okay or even well. To have energy and some expectation of getting things done. I don’t want to be disabled. I feel like life is passing me by, like I don’t do anything, like my life doesn’t matter. I say that I know […]

Ill living

Once, when I was much much younger, I told someone I trusted that every day I chose to live. I thought this person might understand something of what it was to live with chronic migraine. But they ordered a wellness check and our interactions turned achingly distant and coldly professional. I am reading the October […]

Why I can’t write a good personal essay | Tenure, She Wrote

I wrote about how my understanding of disability has shifted from internal to external and how that’s affected my ability to get support. A little smarts and hard work and luck can’t make my chronically ill body “productive.” Even if they did, it would only make it alright for me – and that’s not good […]

Being chronically ill doesn’t make me a better person, but it does help me identify jerks

I assume people think surviving illness changes you because there’s something inherently character-building about pain. But what happened wasn’t a struggle, in the sense that through perseverance I overcame something difficult. For a fairly brief but unexpected period of my life, I lost my capacity to work, to advocate for myself, to navigate life and […]

Energy meter

I found this in my drafts folder from a few years ago. Yesterday I made (simplified and adapted-to-my-dietary-restrictions) curry, soup, and shepherd’s pie. I also walked someone to the bus stop. That is all I did. Today I can’t get out of bed. Things are better now. But mostly because I’m usually not so foolish […]