August 22, 2017
I started doing really well earlier this summer and had several weeks where I was able to do at least some work every single day. Then an environmental trigger I have no control over happened and I got stuck in … Continue reading
October 10, 2016
I get the aura, I take the pill, I lie down. The pain starts, increases, becomes everything. Two hours later it has quieted to a throb that consumes most, but not all, of my attention. The ice pack doesn’t help, … Continue reading
October 8, 2016
It’s a challenge to mindfully walk that middle path between being proactive about your health – always trying to improve it – but at the same time, accepting the way you are so that you can make the best of each day.
From Toni Bernhard’s How to Live Well with Chronic Pain and Illness
Illness is the space where I came to understand the limitations of my being. It’s a lesson we all learn but one I learned harshly and twice, first watching my mother and then enduring my own suffering. Now I know that I can lie down for hours without moving. I can meditate. I can stare at the wall and not despair. If I discovered something redemptive in this experience, it’s that capacity for stillness.
Source: Every Body Goes Haywire | Online Only | n+1
I have a post up today on Tenure, She Wrote about structural financial barriers in academia for chronically ill graduate students.
If a worker is less productive, should they be paid less? This is not an abstract question for me.
As a sick graduate student, I take longer to produce academic products like papers and degrees than the average well graduate student. Instead of the 4-5 years expected for a PhD student here, I’ll likely take 6-7 years. Additionally, my living expenses are higher because of my illness; despite living in a country with socialized medicine, I still have thousands and thousands of dollars a year in uncovered medical expenses.
Read more on TSW
August 24, 2016
I started a new drug at the end of January – micronor – with the hopes that it would help with the increase in severe migraine attacks I get around my period. I then promptly had 3 periods in 2 … Continue reading
August 17, 2016
I whine about people not taking migraine seriously, but we’re pretty shit at properly caring for any sick people who are not rich as god. A few months ago I was in line at the grocery store behind a construction … Continue reading