Posts filed under “Migraine”

If you need so much help, why aren’t you asking for it?

In 2010, after a great deal of lobbying by an influential group of headache specialists, the National Institutes of Health (NIH) held a workshop on headache research that included a small group of people representing stakeholders in headache medicine: representatives from various NIH institutes, various headache organizations, headache specialists, researchers, and patient advocates. The meeting […]

I’ll wear the slinky dress and give up my art if you’ll invest in migraine research

In general, online communities embrace the biomedicalization of migraine, perhaps even more than their  doctors do, in the service of legitimating migraine as a socially sanctioned disease — since they extend the  neurobiological paradigm beyond what biomedical evidence currently supports. They do so because they believe that the neurobiological model is capable of remaking public […]

Energy meter

I found this in my drafts folder from a few years ago. Yesterday I made (simplified and adapted-to-my-dietary-restrictions) curry, soup, and shepherd’s pie. I also walked someone to the bus stop. That is all I did. Today I can’t get out of bed. Things are better now. But mostly because I’m usually not so foolish […]

Double disruption

Pain obliterates identity, but the loss of identity in chronic illness isn’t simply a function of pain. It is also a result of constant gaslighting about the experience of your own body. Pain is a mysterious and terrifying force. It makes sense that pain destroys us. Being told by a loved one that you are […]

My greatest fear is a fantasy

I started doing really well earlier this summer and had several weeks where I was able to do at least some work every single day. Then an environmental trigger I have no control over happened and I got stuck in bed again for more than 2 weeks. I’m slowly, slowly coming out of this cycle […]

Migraine may affect my personality, but my personality didn’t give me migraine

Anna Eidt wrote recently about the “migraine personality,” an old and sexist idea that still influences how migraines are perceived and treated. It’s a succinct discussion and debunking of the idea. The “migraine personality” was coined in the early 20th century not long after Victorian doctors thought migraine to be a purely psychosomatic phenomenon. Headache researcher Harold […]