Posts filed under “Migraine”

Disabled bodies in the apocalypse

Disabled people don’t make it through the apocalypse. At least that’s the conventional wisdom of both speculative fiction and our own world: If the biomedical industrial complex collapses, so do all the people who rely on its products. Corporations need us to believe this, yes, but it’s hard to deny the truth of it. If […]

Why I can’t write a good personal essay | Tenure, She Wrote

I wrote about how my understanding of disability has shifted from internal to external and how that’s affected my ability to get support. A little smarts and hard work and luck can’t make my chronically ill body “productive.” Even if they did, it would only make it alright for me – and that’s not good […]

Please visit me at home; everything is too much

The disability associated with severe cases of migraine extends far beyond days spent in bed. Online, people talk about the ways that migraine has rendered them housebound. Driving, for instance, can be difficult; shifting lights trigger migraines and drug side effects cause clumsiness. People with migraine stay home because they fear perfumes or other foreign […]

Boring patients with boring diseases

When focusing on the paper crackling between my chilled skin and the vinyl of the exam bed wasn’t enough to distract from the discomfort of my treatment, I asked my neurologist why there are so few specialists for migraine. I’ve been seeing a specialist in stroke for the last 5 years while I wait for […]

If you need so much help, why aren’t you asking for it?

In 2010, after a great deal of lobbying by an influential group of headache specialists, the National Institutes of Health (NIH) held a workshop on headache research that included a small group of people representing stakeholders in headache medicine: representatives from various NIH institutes, various headache organizations, headache specialists, researchers, and patient advocates. The meeting […]

I’ll wear the slinky dress and give up my art if you’ll invest in migraine research

In general, online communities embrace the biomedicalization of migraine, perhaps even more than their  doctors do, in the service of legitimating migraine as a socially sanctioned disease — since they extend the  neurobiological paradigm beyond what biomedical evidence currently supports. They do so because they believe that the neurobiological model is capable of remaking public […]