December 18, 2018
by sarcozona
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Disabled people don’t make it through the apocalypse. At least that’s the conventional wisdom of both speculative fiction and our own world: If the biomedical industrial complex collapses, so do all the people who rely on its products. Corporations need … Continue reading
I wrote about how my understanding of disability has shifted from internal to external and how that’s affected my ability to get support.
A little smarts and hard work and luck can’t make my chronically ill body “productive.” Even if they did, it would only make it alright for me – and that’s not good or fair. Telling those stories for so long made dealing with the reality of living-with-chronic-illness-under-capitalism/being disabled and past traumas really difficult. As soon as I decided the problem wasn’t me, but the response of people and systems to me, I stopped getting funding. As Dr. Sara Ahmed says, “when you expose a problem, you po
Source: Why I can’t write a good personal essay | Tenure, She Wrote
April 12, 2018
by sarcozona
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Darwin was ill for much of his life, largely restricted to his home. His mysterious illness was managed with rest and strict routine with work but also a beloved walking path and intimate family time. I don’t think I’m the … Continue reading
April 9, 2018
by sarcozona
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The disability associated with severe cases of migraine extends far beyond days spent in bed. Online, people talk about the ways that migraine has rendered them housebound. Driving, for instance, can be difficult; shifting lights trigger migraines and drug side … Continue reading
April 2, 2018
by sarcozona
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When focusing on the paper crackling between my chilled skin and the vinyl of the exam bed wasn’t enough to distract from the discomfort of my treatment, I asked my neurologist why there are so few specialists for migraine. I’ve … Continue reading
March 19, 2018
by sarcozona
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In 2010, after a great deal of lobbying by an influential group of headache specialists, the National Institutes of Health (NIH) held a workshop on headache research that included a small group of people representing stakeholders in headache medicine: representatives … Continue reading
March 8, 2018
by sarcozona
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In general, online communities embrace the biomedicalization of migraine, perhaps even more than their doctors do, in the service of legitimating migraine as a socially sanctioned disease — since they extend the neurobiological paradigm beyond what biomedical evidence currently supports. … Continue reading