Doctors are so bad at listening to their patients that my doctors thought I didn’t have migraine or was bad at reporting my symptoms for more than a decade because it didn’t present the way they expected. They convinced me that I wasn’t having migraine and one of the most compelling arguments is that my attacks didn’t seem to follow the right sequence of symptoms. I had the right symptoms, but they were often mixed up together instead of occurring in discrete phases.
But it turns out that’s normal, especially in kids and teenagers. But nobody thought to actually check or listen to patients.
I’m so glad migraine being better researched, but I’m so angry at how long it’s taken.