Gravity's Rainbow

botany, shoes, books, and justice

October 12, 2014
by sarcozona

Migraine Memory

My memory is strange lately. I was talking to someone last weekend about my mother’s visit to Epiphyte City awhile ago. Then a few nights later, on the phone with her, she brought it up and I did not remember her visit at all – I denied that it had happened. She had to tell me many details of it before I would believe it and even more before I could remember the first detail.

This is one of many things that have gone wrong with my memory lately.

Perhaps migraines are eating holes in my brain. Perhaps that strange migraine I had a few weeks ago was really a stroke. Perhaps this is just how memory works.

Anyway, I’m having a CAT scan soon.

Stuff worth reading

Comment on Toxic academic mentors by GermanPostdoc
Bad supervisors have extraordinary power over people’s careers in academia

Frameworks for Understanding the Future of Work

Adobe’s e-book reader sends your reading logs back to Adobe—in plain text.
Considering how much of the ebook market is of the rather naughty variety, this is extra awful.

Step Inside the World’s Most Dangerous Garden (If You Dare).

The Ebola Patient Was Sent Home Because of Bad Software

How Do Your Drinking Habits Compare To The Rest Of The Country’s?
That’s a lot

Scenes from the New American Dustbowl.
The water isn’t coming back.

The Importance of Music to Girls. Trying to “protect” your favorite bands from t…

What’s Wrong With “America’s Ugliest Accent”
“Maybe it’s not always about class, but it’s never really about language. It’s about the kind of people who speak it.”

Let’s stop mixing up education and social capital
“It’s not what you learn at these expensive schools that matters, it’s the social capital that you accumulate”

Most People With Addiction Simply Grow Out of It

Fashion this


Do you like the links I post? You might want to follow me on twitter, too. You may also like Epicene Cyborg, who is the source for many of the fantastic things I share.

October 10, 2014
by sarcozona

A case of pudding hysteria resolved with a case of pudding

2014-10-08 15.49.19Do you remember the pudding hysteria incident? If you do not, let me refresh your memory: coming out of a migraine, feeling terrible, I developed an overwhelming craving for pudding. When I realized there was no pudding, my migraine brain melted the fuck down and I cried and cried and cried. Then, struck by the silliness of crying over pudding at my age, I laughed and laughed and laughed.

A concerned reader of this blog took this situation very seriously and determined that it should never happen again. Earlier this week, I received a mysterious parcel in the mail. I opened the rather heavy box to discover an entire case of butterscotch pudding.

Nearly a week later and I’m still grinning about it.

October 9, 2014
by sarcozona

Rewriting the book on living with chronic illness

Cheer up! | From the Chronic Pain Self-Management Program Workbook by LeFort and Webster

Cheer up! | From the Chronic Pain Self-Management Program Workbook by LeFort and Webster

Have you or someone you loved with a chronic condition been let down by the medical system’s approach to chronic pain self-management? @CampOther, @ElitaBaldridge, @cginpvd, myself, and others are working on a project to improve things a bit and we’d like your help.

Patients with chronic pain and illness often have a hard time getting the help and care they need from the medical system. Learning to manage our conditions is often a long, lonely process of trial and error and google. That’s why I was so excited when my counsellor recommended the Chronic Pain Self-Management Program to me – a program developed by actual medical professionals with research backing it up? How wonderful!

The reality was less so.

The entire workshop is 6 sessions long. I will not be attending further sessions, but I have read through the two books for the course: Living a Healthy Life with Chronic Conditions and Chronic Pain Self-Management Program Workbook. I do think that this course presents valuable information for people with chronic conditions, especially if they are relatively newly diagnosed. If someone had given me the practical information in this course when I was 10, I would have saved myself a lot of trouble. But surrounding the basic, useful, information are a lot of flat out harmful portrayals of people with chronic conditions, ignorance, judgement, and tone deaf language. Structural issues are all but ignored.

As I read Living a Healthy Life, I annotated it heavily, imagining mailing it with all my angry comments to the authors. So when @CampOther suggested a rewrite, I jumped at the idea. A group of us are editing and annotating the book with plans to send it back to the program managers at Stanford. If you’d like to help us, get me your email address and I’ll send you an invite to the google doc where the action is happening.

This program – and it’s materials – are apparently very widely used in this space, so making a change here would make a difference to a lot of people with chronic conditions looking for help.