Posts by sarcozona
If you need so much help, why aren’t you asking for it?
In 2010, after a great deal of lobbying by an influential group of headache specialists, the National Institutes of Health (NIH) held a workshop on headache research that included a small group of people representing stakeholders in headache medicine: representatives from various NIH institutes, various headache organizations, headache specialists, researchers, and patient advocates. The meeting […]
I’ll wear the slinky dress and give up my art if you’ll invest in migraine research
In general, online communities embrace the biomedicalization of migraine, perhaps even more than their doctors do, in the service of legitimating migraine as a socially sanctioned disease — since they extend the neurobiological paradigm beyond what biomedical evidence currently supports. They do so because they believe that the neurobiological model is capable of remaking public […]
Energy meter
I found this in my drafts folder from a few years ago. Yesterday I made (simplified and adapted-to-my-dietary-restrictions) curry, soup, and shepherd’s pie. I also walked someone to the bus stop. That is all I did. Today I can’t get out of bed. Things are better now. But mostly because I’m usually not so foolish […]
Double disruption
Pain obliterates identity, but the loss of identity in chronic illness isn’t simply a function of pain. It is also a result of constant gaslighting about the experience of your own body. Pain is a mysterious and terrifying force. It makes sense that pain destroys us. Being told by a loved one that you are […]
My greatest fear is a fantasy
I started doing really well earlier this summer and had several weeks where I was able to do at least some work every single day. Then an environmental trigger I have no control over happened and I got stuck in bed again for more than 2 weeks. I’m slowly, slowly coming out of this cycle […]
Summer reading list – military scifi for people who hate military scifi
The second book in Tanya Huff’s Peacekeeper series was released today, and I don’t know if I’ve got enough willpower to work instead of reading. I am SO EXCITED. The Peacekeeper series is a continuation of Huff’s very excellent Confederation series. I was annoyed by The Expanse for awhile because it’s obviously an inferior knock-off, […]
What working through a migraine when the pain isn’t so bad looks like
Deleting all of the data and half the analyses associated with your PhD and not realizing it for 20 minutes while RStudio keeps telling you the files you’re working on don’t exist. All praise to the glories of git and automatic backups!