December 18, 2018
Disabled people don’t make it through the apocalypse. At least that’s the conventional wisdom of both speculative fiction and our own world: If the biomedical industrial complex collapses, so do all the people who rely on its products. Corporations need … Continue reading
I wrote about how my understanding of disability has shifted from internal to external and how that’s affected my ability to get support.
A little smarts and hard work and luck can’t make my chronically ill body “productive.” Even if they did, it would only make it alright for me – and that’s not good or fair. Telling those stories for so long made dealing with the reality of living-with-chronic-illness-under-capitalism/being disabled and past traumas really difficult. As soon as I decided the problem wasn’t me, but the response of people and systems to me, I stopped getting funding. As Dr. Sara Ahmed says, “when you expose a problem, you po
Source: Why I can’t write a good personal essay | Tenure, She Wrote
April 12, 2018
Darwin was ill for much of his life, largely restricted to his home. His mysterious illness was managed with rest and strict routine with work but also a beloved walking path and intimate family time. I don’t think I’m the … Continue reading
April 9, 2018
The disability associated with severe cases of migraine extends far beyond days spent in bed. Online, people talk about the ways that migraine has rendered them housebound. Driving, for instance, can be difficult; shifting lights trigger migraines and drug side … Continue reading
August 22, 2017
I started doing really well earlier this summer and had several weeks where I was able to do at least some work every single day. Then an environmental trigger I have no control over happened and I got stuck in … Continue reading
October 16, 2015
What’ll you live on? You can’t work in a factory now.”
“They’ve promised me a disability rating. I don’t know if it’ll be Group 2 or Group 3.
“Which one is Group 3, then?” asked Kostoglotov. He didn’t understand these disability groups, or any other civil regulations for that matter.
“It’s one of these groups – enough to buy you bread, but not enough for sugar.”
from Alexander Solzenitsyn’s Cancer Ward